My name is Westin Thomas and I have a rare genetic disorder called Costello Syndrome. I have the G12S genetic version of this disorder.
On my blog, you can read all about my day to day life with Costello Syndrome.
My Mommy would love to hear from you. To contact her, you can send an e-mail to angel@angelthomas.com.
If you have a loved one who was recently diagnosed with Costello Syndrome, she can give you some starter info and tell you how to get on the e-mail listserve and find our Facebook page.
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